The International Foundation for CDKL5 Research was
founded by a small group of parents who met on a CDKL5 support group and wanted to raise awareness and research dollars in order to find
treatments and a cure for their children. To us, this symbol reminds to keep going and never give up. Green is the color of hope, while
the circle represents our children and our ‘family’ in one unbreakable unit.
Another special meaning is found within the shape of a starfish at the center of the circle. The Starfish Story [adapted from The Star Thrower
by Loren Eiseley (1907-1977)] struck a chord for those working in the foundation. It is a powerful reminder that we each have
within us the power to make a difference in the lives of others - today. It is refusing to accept failure and by working together we
can persevere against the odds.
If you are interested, you can request the use of this symbol the same way you request the use of the IFCR name and logo. Please
complete the Use of Name & Logo Form
and mail back or scan/email to
Our children inspire us every day. Will you help us and become a thrower of starfish?
The Starfish Story
adapted from The Star Thrower
by Loren Eiseley (1907 - 1977)
Once upon a time, there was a wise man who liked to go to the ocean and walk on the beach.
One day, as he was walking along the shore, he looked down the beach and saw a human figure moving like a dancer. He smiled to himself at the thought of someone who would dance to the day, so he walked faster to catch up.
As he got closer, he noticed that the figure was that of a young boy, and that what he was doing was not dancing at all. The young boy was reaching down to the shore, picking up starfish and gently throwing them into the ocean, beyond the breaking waves.
"I must ask, why are you throwing starfish into the ocean?" asked the somewhat startled wise man.
To this the young boy replied, "The sun is up and the tide is going out. If I don't throw them in, they'll die."
Upon hearing this, the wise man commented, "But, young child, do you not realize that there are miles and miles of beach and there are starfish all along every mile? You can't possibly make a difference!"
As if he hadn't heard, the young boy bent down, picked up yet another starfish and threw it lovingly back into the ocean. As it met the water, he turned, smiled and said, "I made a difference to that one!"