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Glyn's Gift

The beginnings of CDKL5
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3rd International CDKL5 Family Conference & Science Symposium

SAVE the DATE!IFCR is excited to announce the 3rd International CDKL5 Family conference and Science ... Learn More

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Donating to IFCR


In Loren Eisley’s story, The Starfish Thrower, a young boy had the belief that he could overcome a tragic situation and make a difference, even though others saw it as an impossible task. As families with a child suffering from a CDKL5 disorder, we will not give up until we find better treatments and a cure for this devastating disorder.

The cost and the amount of work to be done seems insurmountable, but if we stand side-by-side and view the starfish-strewn beach through the hopeful eyes of a small child, each of us can do our small part to get our starfish safely back to the sea. If we wait for a rogue wave to wash up on shore and save them, we may be waiting a very long time, and time is of the essence.

Let's start throwing our starfish now! Imagine what we can accomplish together in just 12 months. As a CDKL5 Starfish Thrower, for as little as $10 per month, you can help fund important research that can have a direct impact on a child with CDKL5 disorder. There are around 600 families worldwide that are directly affected by a child with a CDKL5 disorder. If each of those 600 families donated $50 per month to IFCR, that’s $360,000 in one year! That’s over $1,000.000 in the next three years!

As a CDKL5 Starfish Thrower, your monthly contribution provides IFCR with much needed funding for research initiatives that directly impact the affected children.


Hope Level - $10 per month
Hope is the thing with feathers that perches in the soul – and sings the tunes
without the words – and never stops at all. ~Emily Dickinson

Love Level - $25 per month
We may give without loving, but we cannot love without giving.
~Bernard Meltzer

Cure Level - $50 per month
The Cure for anything is salt water: sweat, tears, or the sea.
~Isak Dinesen  


Starfish Thrower – a one time donation at your desired amount
How wonderful that no one need wait a single moment to improve the world. 
~Anne Frank 


If you would like to mail your donation, please make checks payable to IFCR and send to:
Attn: Donation
P.O. Box 926
Wadsworth, OH 44282

IFCR is a 501(c)3 non-profit organization (EIN #27-0950477). All donations are tax deductible to the extent the law allows. All donations will receive an acknowledgment letter to be used as a receipt of your donation.

United Way

Did you know that you can direct your United Way donations to a specific charity? If you support the United Way through your place of work, you can opt to support the IFCR by listing our name and our EIN #27-0950477.

Other Donations

There are several other ways you can donate to help the International Foundation for CDKL5 Research. Many of these have financial benefits to you as well as helping the IFCR. If you're interested in finding out more about the following giving plans or if you have any questions, please contact us at .

Bequests – the IFCR can be named as a beneficiary in your will
Appreciated Assets – stock, land, or other property that has appreciated in value can be donated with a tax deduction for current fair market value of the asset and avoidance of some or all capital gains taxes
Charitable Trusts – allow donors to make a donation, receive a tax deduction, and receive income or a lump sum payout for themselves or their beneficiary
Employer Matching Program - Many companies have programs where they will “match” charitable contributions made by their employees
Life – IFCR can be listed as a beneficiary for life insurance policies
Retirement- may donate all or part of an IRA, receive a tax deduction, and avoid income tax on the gift amount.

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