NIH Awards Natural History Study Research Consortium
10/28/2014 12:00:00 AM
National Institute of Health (NIH) announced awards to expand the Office of Rare Diseases Research
part of the National Center for Advancing Translational Sciences (ORDR-NCATS) collaborative Rare
Diseases Clinical Research Network (RDCRN).
Through the network, physician scientists at 22 consortia will work with 98 patient advocacy groups to advance clinical research ...
IFCR Announces 2nd International Family Conference
2/20/2014 12:00:00 AM
International Foundation for CDKL5 Research (IFCR) Announces
2nd International CDKL5 Family Conference
“Opening doors to discoveries... Hope is the Key”
WADSWORTH, OHIO, February 20, 2014 --The International Foundation for CDKL5 Research (IFCR) is pleased to announce its Second CDKL5 Family Conference to be held from June 26 through June 28, ...
IFCR Announces 2012 Grant Program
3/21/2012 12:00:00 AM
IFCR proudly announces its the 2012 Grant program: The International Foundation for CDKL5 Research has committed $150,000 in grants for clinical research projects to begin studying seizures, gastrointestinal and cardiovascular issues as they relate to CDKL5. In addition, IFCR is pledging an additional $200,000 in research support for ongoing projects. These are your dollars at work! Thank you for ...
The IFCR is now a member of NORD
12/19/2011 12:00:00 AM
The International Foundation for CDKL5 Research is very happy to announce that we are now a member of the National Organization for Rare Disorders (NORD). NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services. With this new partnership, IFCR will continue to st...