Join IFCR Now!

IFCR Store

Partner Login

User Name:    Password: 

Glyn's Gift

The beginnings of CDKL5
Our Next Event

Natural History Study

Learn More

iPS Disease Modeling and Drug Development in CDKL5

Dr. Muotri will attend the IFCR Science Symposium to be held in the Chicago, IL, area in June. He has ... Learn More

GoodSearch: You Search...We Give!

Scientific Advisory Board



Sumit Parikh, M.D. was appointed to the IFCR Scientific Advisory Board in September of 2010. Dr. Parikh currently holds several positions at the Cleveland Clinic including: co-director of Neurogenetics, metabolic and mitochondrial disease clinic, co-director of Cyclic Vomiting Syndrome Clinic, staff physician of Cleveland Clinic Neuroscience and Pediatric Institutes, Staff Physician at Fairview Hospital, and eCleveland Clinic Consultant. Dr. Parikh holds many board certifications including certifications in pediatrics, child neurology, medical genetics and metabolic disease. He has contributed to a number of publications. Dr. Parikh has had the opportunity to diagnose many of our CDKL5 children.


  David George Frame, Pharm.D was added to the IFCR Scientific Advisory Board in September of 2010. Dr. Frame came to us with great experience in both his knowledge of pharmaceuticals and research. He currently works for the University of Michigan. Dr. Frame also serves on several advisory boards including the International Rett Syndrome Foundation, which is closely related to CDKL5. He is a part of many professional societies and has received numerous honors and awards.
  Walter Erwin Kaufmann, M.D. was appointed to the IFCR Scientific Advisory Board in April of 2011. Dr. Kaufmann is an active medical staff member and professor at Boston Children's Hospital and Harvard Medical School, where he is head of the Rett Syndrome Clinic. He has a vast collection of publications covering a wide range of neurological conditions including Rett Syndrome, Fragile X and autism. Dr. Kaufmann brings with him more than 30 years of experience, research and education to IFCR.
© 2017