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The beginnings of CDKL5
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iPS Disease Modeling and Drug Development in CDKL5

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Request for Proposal

IFCR 2017 Grant program
IFCR’s goal in 2017 is to begin exploration of CDKL5 from a clinical perspective.  
 
CDKL5 disorder is so new and rare that very little is known about the pathophysiology of this disorder.  Our purpose of funding clinical research projects is to help us understand how the CDKL5 protein, and lack thereof, affects different organ systems in the human body, and then move quickly into identifying potential therapeutic interventions that will ameliorate symptoms and lead to an improved quality of life for all those affected.
 
IFCR will issue CDKL5 basic science, translational and clinical research grants in the amount of  $50,000 each which will be awarded to investigators for one year, with emphasis on research grants that will address and explore the etiology, pathogenesis and possible therapeutic interventions of one of the following:
 
1) CDKL5 related Seizures and Neurologic symptoms: including seizure control, muscle tone, apraxia, behaviors, environmental modifiers, pharmaceuticals, adjunct therapies.
2) CDKL5 related Gastrointestinal health: including swallowing and feeding issues, GI motility, GERD, dietary or pharmaceutical modifications that improve GI symptoms
3) CDKL5 related Cardiovascular health: including arrhythmia’s, conduction disturbances, structural anomalies and autonomic function/dysfunction
4) CDKL5 related Bone health:  including scoliosis, therapeutic interventions, preventative measures
 
2017 Funding Cycle - Open
  • Accepting Letter of Intent (LOI) at anytime
  • Notification of invitation for full application upon review by Scientific Advisory Board
  • Full application 30 days after notice
Letter of Intent: All applicants must submit a Letter of Intent.  All LOI’s are reviewed by IFCR’s Scientific Advisory Board, which will make the final decisions as to who will be invited to submit full grant proposals.

Eligibility:  Established or young investigators* are eligible for this award, and should propose basic or clinical studies involving human subjects.  IFCR encourages research projects that are collaborative and with a multidisciplinary approach.  We also encourage studies that will allow applicants to seek future National Institutes of Health grants.   Researchers and clinicians from any country are eligible to apply, however all applications must be submitted in English.
  
Please submit your Letter of Intent or any questions to David Frame at dframe@cdkl5.com or Katheryn Elibri-Frame at keframe@cdkl5.com 
 
© 2017