External Links

Helpful external resources for your information.

External Resources

External Link

Courageous Parents Network is a great resource for palliative and hospice care information including “NeuroJourney” a tool will help orient and support you as you navigate the ever-evolving needs of your child and the complex decisions that lie ahead.

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External Link

The Circle of Care Guidebook for Caregivers of Children With Rare and/or Serious Illnesses

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Complex Child includes content written by parents of children with healthcare needs and disabilities.

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What is a Gene Mutation?

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Introduction to the Nervous System

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