The C.A.R.E. Binder
The C.A.R.E Binder is a resource for families who are Caring for Adults with a Rare Epilepsy. This interactive, fillable PDF resource has been created to support families as they begin to work through long‐term adult care planning for their loved one with a rare epilepsy like CDKL5 Deficiency Disorder. It can guide you through some of the challenges families face as their loved one ages into adulthood.
VIPrareCARE.com and the C.A.R.E Binder were proudly developed in collaboration with the Dravet Syndrome Foundation, Lennox-Gastaut Syndrome Foundation, TSC Alliance and other organizations who support families like yours and was made possible through UCB funding and partnership.
Download the Interactive PDF