The CDKL5 Connection is the official podcast of the International Foundation for CDKL5 Research (IFCR), created to bridge science, care, and community. Through conversations about research, clinical trials, care, daily life, and IFCR updates, the podcast will make complex topics more accessible, keep our community informed, and strengthen connections among families, caregivers, clinicians, researchers, and advocates around the world. 

Meet the Hosts 

Dr. Raj Rajaraman, a clinician, researcher, and long-time partner of the CDKL5 community, will primarily host CDKL5 Connection. He will lead many episodes, including the recurring Ask Dr. Raj segment, where he answers questions submitted by families, caregivers, and community members. 

In addition to Dr. Raj, listeners will hear from special guest hosts and expert contributors, bringing diverse perspectives from across the CDKL5 community. Select episodes may also be hosted by IFCR leadership, providing updates on organizational initiatives, community programs, advocacy efforts, educational events, and research progress. 

Help Shape the Podcast 

One of the most important features of CDKL5 Connection is Ask Dr. Raj, a segment driven by questions from our community. 

We encourage you to submit your questions using the form below. Whether your question relates to research, clinical trials, treatments, care, daily challenges, or living with CDKL5, your input will help guide future episodes and ensure the podcast addresses the topics that matter most to our community. 

Submit your questions below to help shape CDKL5 Connection and build a valuable resource for families, caregivers, clinicians, researchers, and advocates around the world.